Special Educational Needs

Voluntary Organisations

ACE (Advisory Centre for Education)
Address: Unit 1C Aberdeen Studios, 22 Highbury Grove, London N5 2DQ
Tel: 020 7354 8318
Advice line: 0808 800 5793
Helpline: 020 7704 9822 (Exclusions)
Website: www.ace-ed.org.uk
Provides information and advice to parents and professionals on all aspects of education. Produces newsletters and literature on range of topics, e.g. choice of school, special educational needs, laws, exclusions.
AFASIC (Association of All Speech Impaired Children)
Address: 2nd Floor, 50-52 Great Sutton Street, London EC1V 0DJ
Tel: 020 7490 9410
Helpline: 0845 355 5577 (10.30am to 2.30pm Monday to Friday)
Website: www.afasic.org.uk
A parent-led organisation that helps children and young people who have a speech and language impairment. Provides an information and support service to parents and professionals with a range of publications/newsletters.
ASBAH (Association for Spina Bifida and Hydrocephalus
Address: Asbah House, 42 Park Road, Peterborough PE1 2UQ
Tel: 01733 555988
Website: www.asbah.org
Offers practical help and information. Trained ASBAH advisers who can visit families and give specialist advice on mobility, continence, hydrocephalus education.
Asthma UK
Address: Summit House, 70 Wilson Street, London EC2A 2DB
Tel: 020 7786 4900
Advice line: 08457 010203
Website: www.asthma.org.uk
Support and information for people with asthma and their families through Asthma Helpline and national network of branches. Supplies educational material.
BDA (British Deaf Association)
Address: 1-3 Worship Street, London EC2A 2AB
Helpline: 0870 770 3300 and minicom 0800 652 2965
Website: www.signcommunity.org.uk
Experienced helpline team answering queries about issues related to deafness and the BDA.
British Dyslexia Association
Address: 98 London Road, Reading, Berkshire RG1 5AU
Tel: 0118 966 2677
Helpline: 0118 966 8271
Website: www.bdadyslexia.org.uk
Offers information about all aspects of dyslexia for families and professionals. Provides publications, organises conferences, etc.
CASE (Campaign for State Education)
Address: 98 Erlanger Road, London SE14 5TH
Tel: 020 8942 2826
Website: www.casenet.org.uk
Campaigns for the rights of all children to the best in state education regardless of their race, gender, home circumstances, ability or disability.
CSIE (Centre for Studies on Inclusive Education)
Address: New Redland, Frenchay Campus, Coldharbour Lane, Bristol BS16 1QU
Tel: 0117 328 4007
Website: www.csie.org.uk/
Information on inclusive education for children with learning disabilities.
The Children's Legal Centre
Address: University of Essex, Wivenhoe Park, Colchester, Essex CO4 3SQ
Advice line: 0845 456 6811
Website: www.childrenslegalcentre.com
A free and confidential legal advice and information service, covering all aspects of the law affecting children and young people.
Contact-a-Family
Address: 209-211 City Road, London EC1V 1JN
Tel: 020 7608 8700
Helpline: 0808 808 3555
Website: www.cafamily.org.uk
A national helpline for parents to access details of local support groups for specific conditions/needs, including rare syndromes.
Council for Disabled Children
Address: National Children's Bureau, 8 Wakley Street, London EC1V 7QE
Tel: 020 7843 6000
Website: www.ncb.org.uk/cdc
NCB promotes the voices, interests and well-being of all children and young people across every aspect of their lives. As an umbrella body for the children's sector in England and Northern Ireland, they provide information on policy, research and best practice for their members and other partners.
Down's Syndrome Association
Address: Langdon Down Centre, 2a Langdon Park, Teddington TW11 9PS
Tel: 0845 230 0372
Website: www.downs-syndrome.org.uk
Provides information, advice, counselling and support to parents/carers. Local branches, publications and newsletters.
Dyslexia Action Winchester Centre
Address: 57 Upper Brook Street, Winchester, SO23 8DG
Tel: 01962 856195
Website: www.dyslexiaaction.org.uk
Services and support for dyslexia and literacy difficulties.
Dyspraxia Foundation
Address: 8 West Alley, Hitchin, Hertfordshire SG5 1EG
Helpline: 01462 454986
Website: www.dyspraxiafoundation.org.uk
Provides information and support through newsletters, local meetings, articles and reading list.
Epilepsy Action (British Epilepsy Association)
Address: New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY
Tel: 0113 210 8800
Helpline: 0808 800 5050
Website: www.epilepsysociety.org.uk
Provides information and advice for families. Networks of local support groups.
Home-Start
Address: 2 Salisbury Road, Leicester LE1 7QR
Tel: 0116 233 9955
Helpline: 0800 068 6368
Website: www.home-start.org.uk
Offers emotional and practical help through a network of volunteers who visit the home of families who have at least one child under the age of five.
Hyperactive Children's Support Group
Address: 71 Whyke Lane, Chichester, West Sussex PO19 2LD
Tel: 01243 551313
Website: www.hacsg.org.uk
This group focuses on raising awareness of the role of diet, nutrition and environment on behaviour. Provides telephone support and information, research papers and literature.
IPSEA (Independent Panel for Special Education Advice)
Address: 6 Carlow Mews, Woodbridge, Suffolk IP12 1EA
Advice line: 0800 018 4016
Website: www.ipsea.org.uk
Provides second professional opinions for parents. Advocacy service for tribunals. Helpline.
Mencap
Address: 123 Golden Lane, London EC1Y 0RT
Tel: 020 7454 0454
Helpline: 0808 808 1111 (Learning Disability)
Website: www.mencap.org.uk
Range of services for children with learning disabilities. Advice, information, holidays, housing/independent living, newsletters, publications. Network of local branches.
NASEN (National Association for Special Educational Needs)
Address: NASEN House, Amber Business Village, Amber Close, Amington, Tamworth B77 4RP
Tel: 01827 311500
Website: www.nasen.org.uk
Promotes the development of children with SEN. Support and advice for parents. Network of national branches. Publications.
National Autistic Society
Address: 393 City Road, London EC1V 1NG
Tel: 020 7833 2299
Helpline: 0845 070 4004
Website: www.nas.org.uk
Information, advice and support to parents. Publications on research. Network with local branches.
National Deaf Children’s Society
Address: 15 Dufferin Street, London EC1Y 8UR
Tel: 020 7490 8656
Helpline: 0808 800 8880
Website: www.ndcs.org.uk
Advice and information on any aspect of childhood deafness. Family support service through UK-wide network of local groups.
National Portage Association
Address: 127 Monksdale, Yeovil, Somerset BA21 3JE
Tel: 01935 471641
Website: www.portage.org.uk
Information on portage services within the UK. Publications, research material, conferences.
National Society for Epilepsy
Address: Chesham Lane, Chalfont St Peter, Bucks SL9 0RJ
Tel: 01494 601300
Helpline: 01494 601400
Website: www.epilepsynse.org.uk
Information and advice service, provides facilities for assessment and treatment, publications.
Network '81
Address: 1-7 Woodfield Terrace, Stansted, Essex CM24 8AJ
Tel: 0870 770 3262
Helpline: 0870 770 3306
Website: www.network81.org
A national advice and helpline facility for parents of children with special needs. Provides literature and publications.
Parentline Plus
Tel: 020 7287 5500
Helpline: 0808 800 2222 or Textphone 0800 783 6783
Website: www.parentlineplus.org.uk
Offers support to anyone parenting a child, freephone helpline, courses for parents, leaflets and publications.
PHAB (Physically handicapped and able bodied)
Address: Summit House, 50 Wandle Road, Croydon CR0 1DF
Tel: 020 8667 9443
Website: www.phabengland.org.uk
Network of clubs offering activities for people of differing abilities. Organises holidays during summer break.
Pre-School Learning Alliance
Address: 69 Kings Cross Road, London WC1X 9LL
Tel: 020 7833 0991
Website: www.pre-school.org.uk
Supports the work of community pre-schools, through training, local branch network, advice and helplines, publications.
RADAR (Royal Association for Disability and Rehabilitation)
Address: 12 City Forum, 250 City Road, London EC1V 8AF
Tel: 020 7250 3222
Website: www.radar.org.uk
Co-ordinating body for member associations involved with disability issues, concerned with access, education, employment, holidays, housing, mobility.
RNIB (Royal National Institute for the Blind)
Address: 105 Judd Street, London WC1H 9NE
Tel: 020 7388 1266
Helpline: 0845 766 9999
Website: www.rnib.org.uk
Offers advice, support and information service for parents and carers of children with visual impairment. Publications, assessment services, equipment.
Royal National Institute for the Deaf
Address: 19-23 Featherstone Street, London EC1Y 8SL
Advice line: 0808 808 0123 or Textphone 0808 808 9000
Website: www.rnid.org.uk
Offers a range of services including communication support, training, information, specialist phone services, helpline.
SCOPE
Address: PO Box 833, Milton Keynes MK12 5NY
Tel: 020 7619 7100
Helpline: 0808 800 3333
Website: www.scope.org.uk
Information and support for parents of children with cerebral palsy, local support services, advice on early years, education, independent living and employment.
SENSE (National Deaf-Blind and Rubella Association)
Address: 11-13 Clifton Terrace, Finsbury Park, London N4 3SR
Tel: 020 7272 7774
Website: www.sense.org.uk
Information, advice and support through a network of regional advisers.
SKILL (National Bureau for Students with Disabilities)
Address: Chapter House, 18-20 Crucifix Lane, London SE1 3JW
Tel: 020 7450 0620
Advice line: 0800 328 5050
Website: www.skill.org.uk
Advice and information on issues concerning further/higher education, training and employment, publications, research.
Young Minds
Address: 48-50 St John Street, London EC1M 4DG
Tel: 020 7336 8445 (office)
Advice line: 0800 018 2138 (parent information service)
Website: www.youngminds.org.uk
Provides a telephone information service for adults concerned about a child or young person in their care. Quarterly magazine, leaflets and booklets.