Voluntary organisations for children with special educational needs
ACE Education Advice and Training
Supports parents by providing online advice and information on all aspects of education and delivers quality training for professionals.
Action on hearing loss
Offers a range of services including communication support, training, information, specialist phone services.
Contact Action on hearing loss
Afasic (Association of all speech impaired children)
A parent-led organisation that helps children and young people who have a speech and language impairment, and their families. They provide information and training for parents and professionals and provide a range of publications.
Support and information for people with asthma and their families through Asthma Adviceline. Provides a wide range of publications.
Contact Asthma UK
BDA (British Deaf Association)
The BDA represent the British Sign Language community and are focused on achieving equality for Deaf people through campaigning and community engagement, creating opportunities for Deaf people to develop and engage with each other and the wider community.
Contact British Deaf Association
British Dyslexia Association
Offers information about all aspects of dyslexia for families and professionals.
Contact British Dyslexia Association
CASE (Campaign for State Education)
Campaigns for the rights of all children to the best in state education regardless of their race, gender, home circumstances, ability or disability.
Contact Campaign for State Education
A national helpline for parents to access details of local support groups for specific conditions/needs, including rare syndromes.
Coram Children’s Legal Centre
A free and confidential legal advice and information service, covering all aspects of the law affecting children and young people.
Contact Coram Children's Legal Centre
Council for disabled children
NCB promotes the voices, interests and well-being of all children and young people across every aspect of their lives. As an umbrella body for the children’s sector in England, they provide information on policy, research and best practice.
Contact Council for disabled children
CSIE (Centre for Studies on Inclusive Education)
Information on inclusive education for children with learning disabilities.
Disability Rights UK
Co-ordinating body for member associations involved with disability issues, concerned with access, education, employment, holidays, housing, mobility.
Contact Disability Rights UK
Down’s Syndrome Association
Provides information, advice, counselling and support to parents/carers and works closely with local support groups.
Contact Down's Syndrome Association
Provides advice, assessment and support for dyslexia and other specific difficulties.
Provides information and support for families. Supports a network of local groups. Publishes a range of leaflets and booklets for parents.
Contact Dyspraxia Foundation
Epilepsy Action (British Epilepsy Association)
Provides information and advice for families. Network of local support groups.
Contact Epilepsy Action
Epilepsy Society (National Society for Epilepsy)
Information and advice service, provides facilities for assessment and treatment, publications.
Contact Epilepsy Society
HACSG (The Hyperactive Children’s Support Group)
This group focuses on raising awareness of the role of diet, nutrition and environment on behaviour. Provides telephone support and information.
HPCN (Hampshire Parent/Carer Network)
HPCN is an independent, parent led group which aims to ensure that the families and carers of disabled children and young people can participate fully in the development of services within Hampshire.
Offers emotional and practical help through a network of volunteers who visit the home of families who have at least one child under the age of five.
IPSEA (Independent Parental Special Education Advice)
Provides second professional opinions for parents. Advocacy service for tribunals.
Range of services for children with learning disabilities. Advice, information, leisure activities, housing/independent living, publications. Network of local support groups.
NASEN (National Association for Special Educational Needs)
Promotes the development of children with SEN. Support and advice for parents. Network of national branches.
National Autistic Society
Information, advice and support to parents. Publications on research. Network with local support groups.
Contact National Autistic Society
National Portage Association
Support and advice for families and their young children. Information on portage services within the UK. Publications, research material, conferences.
Contact National Portage Association
NDCS (National Deaf Children’s Society)
Advice and information on any aspect of childhood deafness. Family support service through UK-wide network of local groups.
A national advice and helpline facility for parents of children with special needs. Provides literature and publications.
Contact Network '81
Parentline (Family Lives)
A confidential service for parents offering information, advice, guidance and support on any aspect of parenting and family life.
Contact Family Lives
Parent Voice is an information and participation service for parents and carers of disabled children aged 0-19 in Hampshire. They use the word “disabled” to encompass all children and young people with a condition or impairment, whether mild, moderate or severe, diagnosed or undiagnosed.
Contact Parent Voice
Phab (Physically handicapped and able bodied)
Network of clubs offering activities for people of differing abilities. Organises holidays during summer break.
Pre-School Learning Alliance
Supports the work of community pre-schools, through training, local branch network, advice and helplines, publications.
Contact Pre-school Learning Alliance
RNIB (Royal National Institute for the Blind)
Offers advice, support and information service for parents and carers of children with visual impairment. Publications, assessment services, equipment.
Information and support for parents of children with cerebral palsy, local support services, advice on early years, education, independent living and employment.
SENSE (National Deaf-Blind and Rubella Association)
Information, advice and support through a network of regional advisers.
Shine (Spina bifida, Hydrocephalus, Information, Networking, Equality)
Offers practical help and information. Trained advisers who can visit families and give specialist advice on mobility, continence, hydrocephalus education.
Provides a telephone information service for adults concerned about a child or young person in their care. Quarterly magazine, leaflets and booklets.
Contact Young Minds